Register

Families that register their child on the Aicardi Syndrome Foundation’s website will receive updates about Aicardi syndrome, including notifications of any future opportunities for participation in research studies. Please complete the form below and click “submit”.

All registration information is moderated and approved by Aicardi Syndrome Foundation staff. Once verified, an email confirmation will be sent to you for log-in privileges. Families must be logged in to view posts in this community forum. All information is kept confidential and will not be shared with anyone outside of the foundation without permission. In order to prevent duplicate registrations, we ask that the child with Aicardi syndrome is registered by a parent or guardian.

Be sure to include a valid email address so we can contact you with any questions.