Links

A.A.L Syndrome d’Aicardi
Aicardi syndrome group in France

Sindrome di Aicardi
Aicardi syndrome group in Italy

National Institutes of Health
Aicardi syndrome listing at the NIH

NORD
National Organization for Rare Disorders — advocacy, research, and service to those with rare diseases

First Hand Foundation
First Hand Foundation is a nonprofit organization that helps children with health-related needs when insurance and other financial resources have been exhausted.

Mun-H-Center
Swedish national orofacial center of expertise — some orofacial information specific to Aicardi syndrome is presented

InteliHealth
Reviewed by Harvard Medical School faculty members, this site has many useful tools such as the “Symptom Scout”, which tailors advice based on how you answer a series of questions.

Home Medical Guide
An online version of the Columbia University College of Physicians and Surgeons Complete Home Medical Guide.

Merck Manual — Home Edition
Comprehensive medical and health information

Health Central
Information and products for a healthier life.

American Academy of Pediatrics
Publications, research, and advocacy from the AAP

American Academy of Family Physicians
Preserves and promotes the science and art of family medicine

Ketogenic Diet
Information and support for the ketogenic diet to control epilepsy

National Committe for Quality Assurance
Health insurance plan rankings

Epilepsy Foundation
An organization dedicated to the welfare of people with epilepsy

Quackwatch
Your guide to health fraud, quackery, and intelligent decisions

Our Kids
Devoted to raising special kids with special needs

Special Child
For parents and caregivers of children with special needs

From Emotions to Advocacy
Parent advocacy and special education information, including the Yellow Pages for Kids with Disabilities

Picture Me
Enriching the lives of disabled and seriously ill children through photography and therapeutic scrapbooking

You Will Dream New Dreams
Books of special interest to special needs families

This list of external sites is provided for informational purposes only. Inclusion on this list does not imply endorsement by the Aicardi Syndrome Foundation.

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