Addie is now almost 10 years old! She has come so far! When diagnosed at 5 months, we were told she would never walk or talk. She now has accomplished both! She attends a therapeutic public school. She says “no cool” every morning as she’d rather stay home then go to school! As you can see we are working on her /s/ blends!
She loves music, swinging and all things Disney and is a happy, shining star in our eyes!
Addie’s seizures have calmed to luckily once a month. She is on keppra and lamictal.
Addie has a brother Ollie and a little sister, Vivianna. She is very, very close with Ollie and loves to terrorize Vivi.
Contact us anytime!!
Tina and Trent Stroup
4 thoughts on “Adelyn “Addie” Stroup”
I am the great great aunt of newly arrived Anabelle. Birthdate 8/24/2014. I was in the delivery room as partner to my grand niece who had decided months ago to give Anabelle up for adoption . My grand niece is only 20 and unmarried with a 2 1/2year old and 18 month old at home. The fathers of these children are in and out of work and don’t provide any support in any respect . However sad this maybe it pales in comparison to the AS diagnosis given to us a few days after Anabelle ‘ s birth . An MRI showed that she had the suspected cyst but also a missing corpus colosum, eye abnormalities and abnormal brain formation. She looks normal in every way except for a body rigidity that I see in her on occasion . She is with an adoption agency that thank goodness lets me come daily to spend time with her. Mom is unable at this point to deal with this . I am encouraged to see your beautiful daughter and wish all of you blessings from The Lord. Whether or not there is a family willing to take on the arduous task of caring for Anabelle is immaterial to my husband and I as we plan on being in her life as best we can going forward. Any words of encouragement or advise you can impart is greatly appreciated. We are not being considered by my great niece as long term caretakers because of our ages , 66 and 64— however we already know Anabelle is a very special gift from above and want her to know she is very loved . Thank you for listening .
My goodness! I never saw this reply to my bio of my daughter! How is Annabelle now? I will pray for her and for you!
I am not familiar with this syndrome. I have a 31 yr.old daughter named Eileen. she started having infantile spasms (seizures every 30 sec) at 10 months. She walked with aids for 14 month starting at age 3. she is now confined to a wheelchair, cannot read, but has become an iPhone talking expert. You should see some of the text she talks and how the phone interpets it. check out our group. we spent many years with Special Olympics, still do but 3 yrs ago started an ARC of texas chapter. Look into the groups, the love, fellowship and support is there. My creed: God only gives you what you can handle and he gives you a challenge that he knows only your heart can truly handle.
I’m so happy to read the progress your daughter has made and it gives me more hope for my 3 month old daughter Kayla Jade she’s been diagnosed with Acardi syndrome.We are in hospital our second stay in 4 weeks just starting the H.P.Acthar injections for her infantile spasms and are about to go home tomorrow I’m so nervous dealing with all this is so new and overwhelming .I am trying to talk with other parents dealing with this syndrome I feel very alone.