Meet

Hayleigh Hunt

I am the step-mother of Hayleigh, an AS child. I love her to peices. I haven't been there through it all, but I met Hayleigh when she was 4. She can walk on her own. She does have "drop seizures" and needs to wear a helmet when she walks alone. She goes to school. She eats solid foods such as mac-n-cheese, and peanut butter and jelly sandwich's. She dosen't chew her food though, just swallows so it has to be small bites. She loves to swing and be outdoors. She just got a new swing for x-mas, that im sure she will love this spring, and fit much better. We were still using a baby swing that we made to fit her, we just couldn't take it away she loves it so much. We even have a hammock swing in the house for her, seen how we live where it snows. She does get angry and throw things or hit, but i think its due to her lack of communication. She dosen't talk the only word she says is "yeah".
Hayleigh has one Brother Logan who is 5, A step-sister Blaise who is 8 (like Hayleigh), and a step-brother Kiyler who is 5 also. We have a very busy family. Hayleigh loves to play with Blaise and Chase her. Hayleighs favorie pet is Snowball our black cat, and he loves her too (she is always dropping food when she eats).
Hayleigh only takes night time meds now. She takes a canadian drug for seziures. A behavorial drug. A natural sleep aid.

Update:

Hayleigh is going to be 10 Years old this year, and she is getting that "teenage" attitude, LOL!
She had a "G-tube" put in last year for feedings. Which has been wonderful, it was rough at first but now she is sick less often, we found out that she was asperaiting everything she ate or drank.
She can still walk on her own, but we have to watch her very close cause she does still have the "drop seizures", and we don't want her to hurt herself.
She does not get angry and hit or throw things anymore, i think she has finally got the right behavorial med. Or just grew out of that stage.
Her mother and I get along very well, I go to Dr. Appts and school meetings with her. We think its very important that we both communicate and be involved, for the sake of Hayleigh. I also feel better knowing whats going on with Hayleigh and being able to ask Dr's questions or concerns that I have, My Husband and Her have Joint custody so they are with us 50/50. When a child that has special needs is in your care, you need to be in the know and able to communicate. A lot of people can't understand how we do it, so I just try and tell them when you have a child that needs special care such as Hayleigh you have to put your own differences aside. She is my husbands ex, but also my step-daughters mother, and that is what is most important to me. but all in all were friends I would say.
Hayleigh has a new Half-sister, by her mother, Makenzie who is almost 2. I get to babysit her once a week, we have so much fun.
I hope everyone enjoyed this update…

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