Meet

Hope Reichert

During week 37 of a normal pregnancy an ultrasound was ordered because the OB thought the baby might be small. That didn't seem to be the case, but her ventricles were large. My husband and I were told that this could mean a variety of things ranging from it is just extra fluid and she will be find to this condition is not compatible with life. All we could do was hope, pray, and wait. We decided that since hope was all we had that would be a great name. Four days later, Hope Elizabeth Reichert entered this world and she was perfect. We were told she was missing her corpus collosum, but we should plan on a "normal child." Even though my mother says normal is just a setting on the clothes dryer. The first three months were fantastic, she reached every developmental marker. On the day she turned 3 months old the seizures began. It took another two months and hospitals before we received the diagnosis. Since everyone touched by this syndrome knows what follows, I am going to skip that part. Hope is now nine months old and wonderful. She is working on holding her head up, sits pretty well with help, and will roll over to see the big screen TV. With the help of her neurologist, physical therapist, occupational therapist, and developmental therapist we are trying to get her seizures under control and let her take us to places we could never have imagined. Hope has a great support network dedicated to help her be the best Hope possible.

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