Julianna Isabella Armstrong

Julianna arrived at 4:36AM on May 19, 2012 weighing 6lbs 15oz and absolutely beautiful. She stole our heart the moment we saw her. Julianna's story is like most stories with girls with Aicardi Syndrome- that she was developing normal until around 3 months when she started having infantile spasms. We noticed this weird movement in her & wasn't sure what it was. We took her to 2 different hospitals who could not figure out what was going on. It wasn't until we videotaped her unusual behavior & headed back to the ER. We were told that she was having a seizure & was transferred to Children's Hospital of Philadelphia where she would undergo a bunch of testing.
On November 13, 2012 while at a routine Neurologist visit we found out that Julianna has Aicardi Syndrome. We were crushed to hear this news.
January 2013 after failing 3 seizure medicines we decided to try the Ketogenic Diet to help try & control her seizures. Julianna has been seizure free for 8 weeks. She also is taking Sabirl & Onfi in addition to the diet.
I created a facebook page (Julianna's Journey) for her to help spread awareness for Aicardi Syndrome & to update family & friends with her progress. We have been very blessed with the support we have received from family, friends & the community.
Mommy & Daddy love you Moo Moo.