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Lorraine

In my desperate search for one he recovers and help for my niece, who suffers from the syndrome Aicardi. I found the foundation Aicardi’s Syndrome where they indicate different cases that help to have spirit with this daily fight.

I have a niece and it has 4 aƱitos and is very sad to see that form is not to be able to help it as, to see his destroyed parents, is a little angel that wanted to be able to offer to him a quality of life, Lorraine was born with 2 tumors in the brain what was causing convulsions in her drinks and it was generating the death of his neurons, I medicate them they diagnosed a little time of life, but with the fight, faith, love and diverse treatments it drinks it to been evolving.

Nowadays still it has convulsions that death generates in his neurons, does not speak, complains, changes of humor, affected his vertebral column creating a small hump in the back, it does not walk, I to him detect the doctor Syndrome Aicardi, even I indicate us that we might operate on it with Cells Mothers, but lamentably in my country the technology is scanty and the economy does not allow to be able to travel to look abroad for alternatives, the desperation and sadness of my premium us divides the soul, this leads me to looking for alternatives of support, for my account, does not know the investigation and search that I am doing, but I have faith in the people and in god who me goes to help to find a light of hope.

We know that Lorenita is a God’s benediction, but the forces sometimes it leaves us, only I would like to exhaust all the alternatives her to be able to help and give him a quality of life, it is a little angel so tender that breaks his the heart, thousand graces for everything, benedictions.
I live in Peru and do not speak Englishman am using the translator, forgive English evil, my mail is rlidiac79@hotmail.com

1 thought on “Lorraine”

  1. Georgene oconnell

    As new great aunt of AS baby I can related to you pain and fears. Your English is good enough to understand your wish to help your family . Our angel is not being kept by mother as she is unable to care for her . My husband and I do what we can . I will prayer for you and your angel . Gods blessings to you .

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