Savannah is a beautiful, loving, and extremely happy now 18-year-old daughter and sister. She has far exceeded all expectations from medical providers and we just live life to the fullest with her. She was full term but when she was born she had to be taken away quickly and transferred to Seattle Children's Hospital. She was put on ECMO (extracorporeal membrane oxygenation) machine to try and save her life. They suspected Aicardi syndrome at first in 1995 but did not definitively diagnose it until 2008. She is completely blind apart from perhaps some minimal light perception. <!–break–> She has scoliosis and osteoporosis. She has seizures that, for the most part, are controlled on Keppra finally. She has significant developmental delay but does communicate some verbally. Eating and gaining weight has been a lifelong issue. She has orthopedic and ambulation issues but is not chair or bed bound. She is in a Life Skills program at our high school and has had Spec Ed services since she was born. Savannah has grown into an amazing young lady now and is active in various local activities for kids with disabilities and health issues such as Starlight Foundation, Special Olympics, the Arc, and parks and rec. She has a choir class and ceramics class this year. She is a senior in high school. It is a honor and privilege to be chosen by God to be the parent of a child with special needs. She is an amazing blessing to our family as are her sisters who love her deeply. Our girls are gifts from God and we want them to experience and enjoy life for as long as we are with them on this earth! (Hi & hugs to my friend Annie Opal!) Momma loves you soooo much Savannah!