The Aicardi Syndrome Foundation is proud to showcase the stories of our families! Visit the Our Stories tab to read about the journey of a child with Aicardi syndrome.
Register your child to begin your own story page to share with family and friends. Join us in our private Facebook discussion group to share suggestions or read what other families have witnessed. Visit our Foundation site to learn more about Aicardi syndrome.
Registration for the 2025 Aicardi Syndrome Family Conference is now open!
As in past years, you can expect a great program, the opportunity to meet and catch up with new and old friends, childcare for our AS children and their siblings, the big/little sister program, and of course, our traditional slide show!
In addition to hosting six meals and multiple activities during the conference, the Foundation has graciously agreed to pay for one room per family for three nights: Thursday, Friday and Saturday. Additional rooms and additional nights will be the responsibility of each family and will be available on a space-available basis. There is a limit of two rooms per family.
The conference will begin at 12:30 pm on Thursday, with on-site registration beginning at 10:30 am. There will be numerous sessions to attend before dinner! Sunday morning will include breakfast and concurrent sessions. The conference will end at 11:30 am, with hotel checkout by 12:00 pm. Here is the link to register for the conference:
https://www.eventbrite.com/e/2025-aicardi-syndrome-family-conference-tickets-1265284011539?aff=oddtdtcreator
We look forward to seeing you this summer!