Our blessing

Hello
I was made in Florida, my mom and dad knows 🙂
I was diagnosed with aicardi syndrome on my birthday, I have two brothers who love me tremendous.
I currently am 7 months and have pt once a week. I sometimes focus my eyes on mommy and dad. I am currently working on head control. I forgot to mention, i like standing on my legs when i get mad.I love my physical therapist I eat like a regular baby food via bottle and I'm trying out baby food.. I like seeing shadows, lights and listening to music , I can hold my head when on tummy and also turn over. My mom has lost a lot of weight due to my illness. She works part time and tries her best to take care of me, my moms dreams is that I walk and hold head, the rest of problems she can deal with. My mom has one friend she likes to call and that's Maryalicia v. I have to go to doctor to see if I have a cold or pneumonia, I had surgery for cyst at three months old. You can catch me up until I break the cycle of sleep , up til 12:00 pm- 4 am in the morning, I forgot to tell you guys my mom got a few smiles from me then at 3 months I started having spasms and seizures , I'm on keppra and spasms are currently 3 times a day , i cry and ball up when this happens. my mom likes my neurosurgeon, he is very calm and nice . I like to travel with mom n dad. My mom writes this blog to let mothers know they are not the only ones out there with this heartache, my mom cries every other day. My first trip from hospital was to my moms favorite Catholic Church. On march 11, 2013 I weigh 17 pounds and 28 inches , wow I'm a big girl:). I wear wacky funky clothes like my mom . U can contact my mom , she will get back with you, via email only. My mom cherishes every moment we have together and will get back to u when I'm sleep, ttys , our blessing