Ideas

Aicardi Awareness Ribbon

Hello Everyone!!!
I just wanted to upload this photo. I have been researching awareness ribbons for our girls and couldn’t find one specifically for Aicardi Syndrome. So, a very talented artist and I decided to come up with our own ribbon, using the colors purple(for epilepsy), pink (for our girls and their birth parents), and white (for innocence). This tattoo meant a great deal to me, I hope you love it as much as I do!!
Sincerely,
Amanda Morelli-Blanda
(mother of Carson Leigh Blanda)

*Since we don’t currently have an awareness ribbon to represent Aicardi Syndrome, please feel free to use this design and its colors to raise awareness for our girls!!

Unfortunately, after many attempts, I am unable to upload the picture on this site, please feel free to view it on Facebook, under Causes (Aicardi Syndrome!!) or on the Aicardi Syndrome Group page. God Bless!!

Aicardi Angel Jewelry

www.aicardijewelery.com

About Us:
I am the mother to Bridget, who was diagnosed with Aicardi Syndrome at 10 weeks old. We were not given any hope for our child to even hold her head up at the time of diagnosis. Three years later she is walking on her own.

Some Aicardi Angels will never walk, some may never speak, many will be confined to a wheel chair. Some will only be with us here on earth for a short time, but no matter the length of their stay, our lives will never be the same. The uniqueness of each Aicardi Angel is a special gift bestowed on her family. Each family learns to accept this gift, deal with the incredible challenges and persevere, none of which is easy. The rarity of the syndrome makes it difficult to diagnose and treat. The parents have become the experts. The families unite through the AS Foundation and share information ranging from therapy and seizure medicines to (at one point inconceivable) milestones and birthday parties. The families have come together to encourage, support and help each other.

Aicardi Angel Jewelry:
I have been working with a jewelry designer for the past year to create a symbol of hope that we can wear proudly as well as raise funds for the Aicardi Syndrome (AS) Foundation. The design is based on the Foundation’s silhouette, the daughter of the founders. Each piece is hand crafted in 100% solid sterling silver with a blackened satin finish (the finish may vary). The delicate face of the angel elevates from the pendant to showcase her beauty. The words “Aicardi Angel” lie beneath the angel. A genuine cultured pink pearl dangles from the bottom of each piece. Unique by nature, I chose to add a pearl which signifies purity and pink because this syndrome mostly afflicts girls.

Donation:
The profit from the jewelry sales will be donated to the Aicardi Syndrome Foundation to help further research as well as help affected families. To learn more about Aicardi Syndrome or to donate directly go to: www.aicardisyndrome.org

Customer Service:
If you are not completely satisfied with your purchase please return the item and I will refund your money within 30 days. If you have any questions, please contact me directly at aicardiangel@gmail.com
Thanks for your support!

Kate Sullivan
aicardiangel@gmail.com

The easiest way to order is online at: www.aicardijewelery.com

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Mail-in orders will be accepted. Please print out an order form and mail it to the address at the bottom of form.

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