Our youngest daughter Stella was born with Aicardi Syndrome.
Striking as her smile is the way she got impacted lives of so many people around.
Living in Brazil, where so little is known and researched about AS, we decided to put together a blog in order to bring awareness about AS and also share with our families and friends our daily challenges, and above all, our daily blessings since she arrived.
Right now we are working on a english version of the blog, but for those who speak portuguese or are curious enough to "google-translate" a little, here is the link for the brazilian version
http://falandodeamorstella.blogspot.com.br
We hope to bring updates on the english version real soon…
Join us and let's talk about love, love for all our Aicardi girls we love so much.
Best regards.
God bless you all.
Fabio and Thays Fernandes
Parents to Rebekah, Pedro and Stella(AS)
Indaiatuba, SP, Brazil